| Author |
Message |
bassfingers
Advanced Member
Username: bassfingers
Post Number: 311
Registered: 11-2005
| | Posted on Wednesday, June 20, 2012 - 8:50 pm: |  |
Sending continued prayers and positive wishes. |
edwin
Senior Member
Username: edwin
Post Number: 1199
Registered: 5-2002
| | Posted on Wednesday, June 20, 2012 - 9:29 pm: | |
Well, the little guy is still progressing by leaps and bounds. He's now almost completely converted over to breast milk direct from mama. I have a feeling we'll be heading home in a few days.
I have to say he's one bright kid. They did a developmental assessment; how he focuses, use of his hands, hearing, etc. and he passed every test with flying colors. I realize that I've been a bit slack with updates, but the long and short of it is that his EEG showed no signs of seizure activity (or even the precursors) and they are now not certain that the MRI showed signs of damage or not. Given his stellar reviews by therapists physical, occupational and speech (I guess he has trouble with adverbs and there might be an issue at work! JK), I think the thought is that he's a healthy, intelligent baby, even advanced in some ways.
From my perspective, it even seems like he's learning to imitate. After his dinner tonight, I laid him down on Dawn's chest and then kissed Dawn's shoulder. He watched me and then turned his head to face Dawn and put his lips to her skin. I did it again and so did he. I'm not saying it's not coincidence, but I'm certainly not saying it is!
He also seems very serious. I know he's been to the abyss and stared it down. I have a feeling he's going to be a very empathetic person.
The doctor who saved his life in Boulder stopped by. He had been at a conference in New York since right after treating Xander and on his return came straight from the airport. He told us that he was amazed to find that Xander had survived. He told he was the sickest kid he'd ever seen from the delivery room at BCH in more than 20 years of being a doctor. We also ran into some of the Flight For Life people. We thanked them, even though they didn't do the transport and when we said we were from Boulder, they knew who we were. I guess his story has traveled around the health care people around here. They were also very glad to hear how well he's doing.
We are soooooo blessed! |
edwin
Senior Member
Username: edwin
Post Number: 1200
Registered: 5-2002
| | Posted on Wednesday, June 20, 2012 - 9:30 pm: | |
PS.
 |
dnburgess
Senior Member
Username: dnburgess
Post Number: 686
Registered: 1-2003
| | Posted on Wednesday, June 20, 2012 - 9:41 pm: | |
Fantastic news! Thanks for the update. |
adriaan
Moderator
Username: adriaan
Post Number: 2946
Registered: 6-2002
| | Posted on Wednesday, June 20, 2012 - 11:54 pm: | |
Amazing! |
jacko
Senior Member
Username: jacko
Post Number: 3199
Registered: 10-2002
| | Posted on Thursday, June 21, 2012 - 1:02 am: | |
This is GREAT news Edwin. It's certainly brightened up a dreary day in edinburgh. be sure to send love and best wishes to dawn and Xander from across the pond.
Graeme |
terryc
Senior Member
Username: terryc
Post Number: 1879
Registered: 11-2004
| | Posted on Thursday, June 21, 2012 - 2:29 am: | |
Fantastic news to hear!!! |
flpete1uw
Member
Username: flpete1uw
Post Number: 66
Registered: 11-2011
| | Posted on Thursday, June 21, 2012 - 3:26 am: | |
Thank You for sharing your Families amazing chapter for Life. I never met you Edwin, but I wish you and yours Great health in your journeys to come. Rock on little Xander!!!
Peace
Pete |
811952
Senior Member
Username: 811952
Post Number: 2236
Registered: 10-2003
| | Posted on Thursday, June 21, 2012 - 4:53 am: | |
That is such good news! |
keith_h
Senior Member
Username: keith_h
Post Number: 1762
Registered: 2-2005
| | Posted on Thursday, June 21, 2012 - 6:07 am: | |
Good to hear things are better. |
slawie
Senior Member
Username: slawie
Post Number: 413
Registered: 8-2002
| | Posted on Thursday, June 21, 2012 - 6:20 am: | |
A true miracle!
This little one is loved by so many here.
Edwin and Dawn and Xander, God bless you all.
slawie |
artswork99
Moderator
Username: artswork99
Post Number: 1758
Registered: 7-2007
| | Posted on Thursday, June 21, 2012 - 6:40 am: | |
So glad to hear of the tremendous progress! And that home is just days away. |
smokinbear
Intermediate Member
Username: smokinbear
Post Number: 162
Registered: 11-2008
| | Posted on Thursday, June 21, 2012 - 6:50 am: | |
YES!!!!!!!!!! |
tbrannon
Senior Member
Username: tbrannon
Post Number: 1508
Registered: 11-2004
| | Posted on Thursday, June 21, 2012 - 6:51 am: | |
Very, very happy for you guys, Edwin.
Will keep you guys in our prayers here- thanks for the update. |
dadabass2001
Senior Member
Username: dadabass2001
Post Number: 1658
Registered: 6-2002
| | Posted on Thursday, June 21, 2012 - 6:58 am: | |
There is so much beauty and joy in helping to mold your child's life and world view. I wish for many continued blessings for you, Dawn and Xander. |
hammer
Intermediate Member
Username: hammer
Post Number: 163
Registered: 9-2009
| | Posted on Thursday, June 21, 2012 - 7:53 am: | |
So glad to hear that everything has worked out for you guys. Just goes to show how resilient little ones can be. Of course the next question is...are you going to raise him as a another bassist or a guitarist (to accompany you..though dueling bassists isn't a bad idea either). |
jcdlc72
Intermediate Member
Username: jcdlc72
Post Number: 169
Registered: 11-2009
| | Posted on Thursday, June 21, 2012 - 8:04 am: | |
YAY!!! B R A V O X A N D E R ! ! ! ! ! ! ! ! |
edwin
Senior Member
Username: edwin
Post Number: 1204
Registered: 5-2002
| | Posted on Thursday, June 21, 2012 - 8:55 am: | |
Drummer! |
davehouck
Moderator
Username: davehouck
Post Number: 10763
Registered: 5-2002
| | Posted on Thursday, June 21, 2012 - 9:16 am: | |
Wow! Wonderful news! |
edwin
Senior Member
Username: edwin
Post Number: 1205
Registered: 5-2002
| | Posted on Thursday, June 21, 2012 - 9:22 am: | |
Even better news today!
Here's what I posted on Facebook:
Xander Update 6/21/12 AM
Free Xander!
Today he gets to feed "ad lib" which means that he can sleep as long as he wants and eat when he wants as long as he gets a certain amount of food every 12 hours.
Not only that, he gets his last IV out, leaving only the heartbeat, respiration and blood oxygen monitors on him.
Finally, he gets to wear real clothes! I know he's enjoyed being nature boy all this time, but it will certainly enhance his photogenic nature.
There are more photos at https://www.facebook.com/media/set/?set=a.10151026146969134.479361.762139133&type=3. This should be open to the public. |
mica
Moderator
Username: mica
Post Number: 7781
Registered: 6-2000
| | Posted on Thursday, June 21, 2012 - 9:42 am: | |
Joy! |
bigredbass
Senior Member
Username: bigredbass
Post Number: 1884
Registered: 9-2002
| | Posted on Thursday, June 21, 2012 - 10:53 am: | |
Thank God that he has allowed this litle one to stay with us ! But I'll tell you this . . . . somehow when I saw that picture of him with his Mom, I just knew this was going to work out. I don't know why, but I felt it. Who knows about these things . . . . It's amazing how the 'close calls' we have in this life have a way of instantly teaching us what's important, and just how much of the things we worry ourselves silly about don't really matter much at all in the grand scheme of things.
My very best to you all, Edwin. In this tough old world, I just LOVE happy endings.
J o e y |
pauldo
Senior Member
Username: pauldo
Post Number: 836
Registered: 6-2006
| | Posted on Thursday, June 21, 2012 - 10:56 am: | |
That's beautiful - the picture and the news.
:-D |
senmen
Senior Member
Username: senmen
Post Number: 1047
Registered: 7-2003
| | Posted on Thursday, June 21, 2012 - 11:48 am: | |
Edwin,
I am very happy to read these great news!
There is a god......
Oliver (Spyderman) |
terryc
Senior Member
Username: terryc
Post Number: 1881
Registered: 11-2004
| | Posted on Thursday, June 21, 2012 - 12:47 pm: | |
Edwin...getting better everyday, great to hear.
I guess Joey is right on that, who gives a damn if the car won't start, it's not the end of the world for gods sake! |
edwin
Senior Member
Username: edwin
Post Number: 1206
Registered: 5-2002
| | Posted on Thursday, June 21, 2012 - 1:19 pm: | |
Funny you should mention the car. After we got home from the hospital on the 11th to get ready for the trip to Denver, we discovered our kitchen sink was clogged. Then, we got in the car and the check engine light went on. The next day, we used Dawn's car which developed a frightening shimmy on the front end. It all worked out, but it sure felt we couldn't catch a break there for a while. |
mario_farufyno
Senior Member
Username: mario_farufyno
Post Number: 799
Registered: 9-2008
| | Posted on Thursday, June 21, 2012 - 2:12 pm: | |
Go Xander, go!!! |
pace
Senior Member
Username: pace
Post Number: 866
Registered: 4-2004
| | Posted on Thursday, June 21, 2012 - 7:32 pm: | |
Simply amazing!!!!!
Now that you're out of the woods, best start banking sleep~ best advice I was given when my daughter was born!!!! |
lbpesq
Senior Member
Username: lbpesq
Post Number: 5169
Registered: 7-2004
| | Posted on Friday, June 22, 2012 - 12:35 am: | |
Edwin:
That's quite a head of hair. I think you may have a little rocker!
Bill, tgo |
terryc
Senior Member
Username: terryc
Post Number: 1882
Registered: 11-2004
| | Posted on Friday, June 22, 2012 - 2:59 am: | |
Or could be cool long haired jazzer! |
yogalembic
Member
Username: yogalembic
Post Number: 89
Registered: 5-2012
| | Posted on Friday, June 22, 2012 - 1:15 pm: | |
Shouldn't he be sleeping with an Alembic? Never too soon, eh? |
yogalembic
Member
Username: yogalembic
Post Number: 90
Registered: 5-2012
| | Posted on Friday, June 22, 2012 - 1:15 pm: | |
Shouldn't he be sleeping with an Alembic? Never too soon, eh? |
edwin
Senior Member
Username: edwin
Post Number: 1207
Registered: 5-2002
| | Posted on Friday, June 22, 2012 - 1:57 pm: | |
Great news! It looks like we're coming home tomorrow! |
elwoodblue
Senior Member
Username: elwoodblue
Post Number: 1414
Registered: 6-2002
| | Posted on Friday, June 22, 2012 - 2:06 pm: | |
!!!smiles!!!
thx for the update, ...been thinking of you three. |
bassfingers
Advanced Member
Username: bassfingers
Post Number: 312
Registered: 11-2005
| | Posted on Friday, June 22, 2012 - 4:06 pm: | |
Great news Edwin and a beautiful picture to go with it!!. |
terryc
Senior Member
Username: terryc
Post Number: 1883
Registered: 11-2004
| | Posted on Friday, June 22, 2012 - 4:07 pm: | |
edwin..great news..all the best for you three.
You have one little tough guy there, wait until he is older and beating you at sports and when he says 'dad I am a better bass player than you'
Then you can smile to yourself. |
edwin
Senior Member
Username: edwin
Post Number: 1208
Registered: 5-2002
| | Posted on Friday, June 22, 2012 - 4:18 pm: | |
Terry, that is my dream! I'm also very happy to have someone to whom to pass on my SI and Starfire.
There is still a lurking issue of the damage they saw on his MRI, another neurologist visited who wanted to do another scan, but I'm going with fully healthy!
I don't know if people here are into astrology at all, but Dawn looked at his chart and found that, according to the stars, Xander will be a huge inspiration to people. When she saw that, on the 11th, we were both wondering how that could ever be, considering he was so sick and near the abyss, but now I see that he's off to a running start! |
richbass939
Senior Member
Username: richbass939
Post Number: 1175
Registered: 11-2004
| | Posted on Friday, June 22, 2012 - 5:12 pm: | |
Edwin,
I am SOOOO happy to hear the good news.
I hope we can meet Xander and visit you and Dawn next time we are in Boulder.
Take care.
Rich |
tncaveman
Member
Username: tncaveman
Post Number: 98
Registered: 2-2011
| | Posted on Friday, June 22, 2012 - 7:30 pm: | |
Edwin - my son is faster than me on the mountain bike now and is better at some things on the bass already. I was hoping he'd start playing my drums when he started playing percussion in band. Now he plays electric bass in the concert band. I don't think he has ever touched the drum set. I sure wish I had a nice set of drums when I was a kid.
Any way, I'm really glad you guys are heading home and the initial problems are over. We spent 8 weeks w/ my son in the neo-ICU. And 6 months w/ apnea problems. With love, prayer, and lots of work, miracles do happen! The two reports of improvements w/ Xander made me smile from ear to ear and my eyes tear up.
Stephen |
groovelines
Senior Member
Username: groovelines
Post Number: 732
Registered: 4-2003
| | Posted on Friday, June 22, 2012 - 9:16 pm: | |
This just made my week, seems he's taken to inspiring people already. Funny how emotions can render you speechless. Never thought I wouldn't be able to type! |
slawie
Senior Member
Username: slawie
Post Number: 414
Registered: 8-2002
| | Posted on Saturday, June 23, 2012 - 7:34 am: | |
You all must be home by now. Hooray!!!
I'll "arc it up" at my gig tomorrow and send a low groove
your way. I am on a bit of a high at the moment as
my youngest son has just been cleared of prostate cancer.
Miracles do happen every day
All our love to your family.
slawie (et al) |
yogalembic
Member
Username: yogalembic
Post Number: 94
Registered: 5-2012
| | Posted on Saturday, June 23, 2012 - 7:40 am: | |
Re; Astrological Chart---dig it!
Re; Inspiration---it has already started, my friend! |
peoplechipper
Advanced Member
Username: peoplechipper
Post Number: 285
Registered: 2-2009
| | Posted on Saturday, June 23, 2012 - 9:53 pm: | |
Such great news, I am happy for you all...funny how happy endings in the movies kinda suck but in real life they're kinda crucial to going forward, at least some of the time...
Tony |
bassthang
Junior
Username: bassthang
Post Number: 37
Registered: 1-2011
| | Posted on Sunday, June 24, 2012 - 5:53 am: | |
Edwin, glad to hear the good news; best of luck to you and your family... |
harald_rost
Advanced Member
Username: harald_rost
Post Number: 224
Registered: 6-2002
| | Posted on Tuesday, June 26, 2012 - 10:33 am: | |
Just back from holidays I read this and I'm glad that all went fine. All the best Edwin! |
edwin
Senior Member
Username: edwin
Post Number: 1221
Registered: 5-2002
| | Posted on Wednesday, July 11, 2012 - 12:22 am: | |
A couple of recent pix. The little man is doing great!
 |
rustyg61
Senior Member
Username: rustyg61
Post Number: 631
Registered: 2-2011
| | Posted on Wednesday, July 11, 2012 - 12:43 am: | |
What a difference a month makes! I love a happy ending! You have a beautiful son with an amazing story Edwin! It sounds like he has become quite the inspiration in the medical circles too! I predict great things for your miracle baby! |
mica
Moderator
Username: mica
Post Number: 7801
Registered: 6-2000
| | Posted on Wednesday, July 11, 2012 - 2:41 am: | |
What a blessing. Overwhelmed with joy for you all. |
davehouck
Moderator
Username: davehouck
Post Number: 10810
Registered: 5-2002
| | Posted on Wednesday, July 11, 2012 - 6:20 am: | |
Beautiful pictures! |
artswork99
Moderator
Username: artswork99
Post Number: 1761
Registered: 7-2007
| | Posted on Wednesday, July 11, 2012 - 8:01 am: | |
Beautiful! |
wishbass
Advanced Member
Username: wishbass
Post Number: 295
Registered: 5-2011
| | Posted on Wednesday, July 11, 2012 - 8:58 am: | |
Awesome! |
lbpesq
Senior Member
Username: lbpesq
Post Number: 5187
Registered: 7-2004
| | Posted on Wednesday, July 11, 2012 - 10:03 am: | |
Great shots. He appears to be deep in thought. Perhaps a philospher in the making?
Bill, tgo |
sonicus
Senior Member
Username: sonicus
Post Number: 2556
Registered: 5-2009
| | Posted on Wednesday, July 11, 2012 - 4:19 pm: | |
Positively Awesome ! Yes he is deep in thought ! With all of us manifesting his welfare now he might be manifesting when Dad will let him play Bass on his Alembic ! Congratulations to all of you ___ All This manifesting might be rubbing off just a little bit _______ |
slawie
Senior Member
Username: slawie
Post Number: 419
Registered: 8-2002
| | Posted on Wednesday, July 11, 2012 - 4:36 pm: | |
What great progress. If Rodin was around he would use him as a sculpture subject.
slawie |
edwin
Senior Member
Username: edwin
Post Number: 1288
Registered: 5-2002
| | Posted on Tuesday, September 11, 2012 - 11:57 pm: | |
Well, here's a couple of shots of Xander now that he just turned 3 months. I'd say he's doing amazingly well!
 |
that_sustain
Junior
Username: that_sustain
Post Number: 41
Registered: 8-2012
| | Posted on Wednesday, September 12, 2012 - 2:06 am: | |
He's beautiful. |
jacko
Senior Member
Username: jacko
Post Number: 3251
Registered: 10-2002
| | Posted on Wednesday, September 12, 2012 - 2:17 am: | |
he's looking great Edwin. Congrats to you all.
Graeme |
terryc
Senior Member
Username: terryc
Post Number: 1981
Registered: 11-2004
| | Posted on Wednesday, September 12, 2012 - 5:51 am: | |
That second pic down says it all, the expression is
' I don't give in easily okay!!'
Last pic..hand position looks like he could be a sax player, then all you would need is a drummer and you have a jazz trio!
Well done to all three of you. |
dadabass2001
Senior Member
Username: dadabass2001
Post Number: 1674
Registered: 6-2002
| | Posted on Wednesday, September 12, 2012 - 6:28 am: | |
I think he he's completely trusting in mom's arms in the first pic.
Mike |
cozmik_cowboy
Senior Member
Username: cozmik_cowboy
Post Number: 1289
Registered: 10-2006
| | Posted on Wednesday, September 12, 2012 - 7:14 am: | |
After getting 3 to adulthood, it still amazes me how fast they row at that age! He's looking good - and even in the smiling pic shows the gravitas you mentioned.
Peter (who drives to Denver day after tomorrow to meet the grandson!) |
smokinbear
Intermediate Member
Username: smokinbear
Post Number: 177
Registered: 11-2008
| | Posted on Wednesday, September 12, 2012 - 8:11 am: | |
:-)) X 1,000,000,000!!!! What a way to start my day, Glad to see such a beautiful child. Way to go Edwin and Company.
-Bear |
pauldo
Senior Member
Username: pauldo
Post Number: 875
Registered: 6-2006
| | Posted on Wednesday, September 12, 2012 - 10:51 am: | |
Last picture looks like Xander is snapping his fingers - groovy! :-D |
davehouck
Moderator
Username: davehouck
Post Number: 10887
Registered: 5-2002
| | Posted on Wednesday, September 12, 2012 - 6:35 pm: | |
Nice to see these pics! |
tncaveman
Intermediate Member
Username: tncaveman
Post Number: 123
Registered: 2-2011
| | Posted on Wednesday, September 12, 2012 - 8:49 pm: | |
Thank you for making me smile with the pictures after a long day!!!
Glad Xander is doing well. Now the big question - Is mom and Dad getting enough sleep - LOL
Stephen |
richbass939
Senior Member
Username: richbass939
Post Number: 1178
Registered: 11-2004
| | Posted on Wednesday, September 12, 2012 - 8:54 pm: | |
In three months he's brought a great deal of concern and now a lot of joy to this community of ours. He's a very powerful young guy. It is so great to see how well he is doing.
Rich |
terryc
Senior Member
Username: terryc
Post Number: 1983
Registered: 11-2004
| | Posted on Thursday, September 13, 2012 - 7:41 am: | |
Oh yes sleep deprevation...I used to work shifts when my two were born, the only way I get some decent sleep is when it was quiet at work!!! |
mica
Moderator
Username: mica
Post Number: 7858
Registered: 6-2000
| | Posted on Thursday, September 13, 2012 - 2:06 pm: | |
We've all been fawning over these great pics of Xander. Thank you so much for sharing them. |
edwin
Senior Member
Username: edwin
Post Number: 1292
Registered: 5-2002
| | Posted on Thursday, September 13, 2012 - 8:23 pm: | |
Thank you all for your wonderful comments and healing energy. I hope that he can meet you all sooner than later. He's a serious little kid but has a lot of joy, too. It's so wonderful to know that he's got such a huge family!
Much love and gratitude from us all,
Edwin, Dawn and Xander |
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